I'll be funding it Scot, I did the UK one.
Was thinking about the media this morning. Am busy compiling 2 leaflets for translation with a team of Coeliacs in the UK:
1) For the medical profession with:
up to date stats,
latest diagnostic procedures,
up to date symptoms (it was thought only underweight children had it and got 'cured' as they got older but the symptoms return in the 40's and the damage is then already done.)
follow up treatment
Connecting medical conditions, Diabetes 1 and 2, Autism, anaemia, schizophrenia, liver probs (my mother died of this one, only drank at xmas), osteoporosis, bad teeth (low tooth enamel) diahorrhea, constipation, obesity, low weight gain, sickness, headaches, poor vision, infertility...... etc
The address and online resource for the European Coeliac Association which is amalgamating all the Coeliac Societies in Europe
2) One for possible Coeliacs with:
what to ask for to find out
what not to do (go gluten free before diagnosis)
getting the whole family tested
where to get GF food
where to eat out and what to ask for
what products with hidden gluten (like soy sauce which has barley in it)
the codex alimentarius situation
These need to be precise (attention span of coeliacs and busy doctors !!!???) easily printed on one A4 page and translated and thrown at newspapers, radio, tV, hospitals, doctors/dentists surgeries etc. I did this in the UK and got Woman magazine, Daily Record 2 page spread in Scotland and a John Peel interview. Just gotta hot up on me Bulgarian double quick.
Have tried to find the diabetes society in Bulgaria via google but can only find UK based groups. They won't be able to help me with helpful tips on getting a charity started here.
The fact that there are so many blind children here also confirms my belief that CD (coeliac disease) is rife in Bulgaria, one of the main symptoms of CD is Diabetes in untreated CD.
All good fun. Have barely slept for thinking about all the things that need doing. Luckily Frank (Tocherburn) is a website designer and will sort all that side of it so if Bulgarians google in Tzoliakia............. and i can touch type Bulgarian now so once the translations (NOT from PC)
are done i can make a bi lingual site (primarily Bulgarian). Any Bulgarians out there want to help me get started, i will take any free advice as i have a feeling that i'll be spending a lot getting this all set up.
Will need a logo too so if anyone is bored..........I have the Silly Yak trade mark registered in the UK because Silly Yak sounds like Coeliac but out here!! Are there any Bulgarian words that sound like tzoliakia? that will get a visual message across?
I guess a BG flag with a grain of wheat on it and a red slash through it may work like the CUK logo in the UK.
this Finnish Society logo is the same logo as the UK one so i guess something similar will 'connect' the BG coeliacs to Europe.
If you've got any more ideas of getting the word out there let me know. Thanks again for the input.
Incidentally, in the UK only one in 5 of us is diagnosed, so it's worth keeping an eye on yourself and family members. It IS a killer condition, NOT a food fad.[/img]